About me

Jenny Webster

My name is Jennifer Webster nee MacKenzie.  I was diagnosed with Stargardts disease, a juvenile onset form of Macular Degeneration, when I was 10.

I completed mainstream schooling and pushed myself to be good at everything, so that I could prove to myself that I was ‘normal’ (whatever that is). I’ll share later about my thoughts on the subject of schooling. I completed BA Honours at Rhodes University and have 6 years teaching experience, 5 years involvement in a young adult’s leadership programme and more years playing mommy. None of this could have happened without the moral support of family and friends

I am married to a wonderful man and we have two thriving children, but we have all been impacted in some way by my blindness.

I created this blog for various reasons:

  • to share some of the joys and struggles of coming to terms with a visual impairment and  how it has blessed and stressed our family.
  • to encourage those who are losing their sight, due to Age related Macular Degeneration or any other eye disease , to not lose sight of their own value.
  • to share practical tips and principles that are useful to help you continue doing things you love doing, and to live a full life.
  • to share some of the useful support structures which are in place for South Africans who struggle with low vision – including information about where to get  gadgets and technology.
  • To provide information that could be useful to people and organisations regarding ‘blind friendly’ environments, both physical and social.

I hope this information will be useful to you and/or a loved one.

 

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3 thoughts on “About me

    1. jenniferawebster

      Thanks for your comment.
      The difficulty with losing ones vision is that the word ‘blind’ is very scary. Many people do not write about it because they are too busy coping with it. If vision loss is progressive the frustration of not being able to use a computer (without setting aside normal life to equip yourself with new skills) exempts you from finding out more about it online. There is a lot more information about coping with blindness than coping with vision loss, and a large percentage of people with impaired vision, simply put it down to age and so give up on many activities which could be pursued …but in a new way. In the suburb where I live, there are more than 30 of us signed up for the monthly Helen Keller Low Vision support group. In South Africa, 1 in 5 people are carriers of genetic retinal diseases. (See Retina South Africa link on the support tab). There are a lot of people in the same boat; we just need to find each other in the broad sea of sightedness. While we live, there is hope and a lot of fun to be had on the journey.

      Reply
      1. claudettemonet

        Thank you for the reply. I am the only one I know who is losing their vision. But I am rather new at this, might find others. I have known now for a couple weeks. I am too young to blame my vision loss on age. I’m 29. I am still awaiting more specifics on my condition and a prognosis on how many more years of vision I can expect. I think I am still just grieving. I haven’t gotten to adapting or overcoming or anything just yet. I have faith that is possible though. Thanks again for your reply.

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